Treating pain in patients with Ehlers-Danlos syndrome : Multidisciplinary management of a multisystemic disease.

Börsch, N; Mücke, M; Maier, A; Conrad, R; Pantel, JT; Sellin, J; Mani, K; Chopra, P

Abstract

Background: The clinical picture of people with Ehlers-Danlos syndromes (EDS) is complex and involves a variety of potential causes of pain. This poses major challenges to patients and healthcare professionals alike in terms of diagnosis and management of the condition. Objectives: The aim of the article was to provide an overview of the specific pain management needs of patients with EDS and address their background. Material and methods: A selective literature search was performed to highlight the current state of research on pain management in EDS patients. Results: Affected patients require multimodal pain management considering their individual needs, disease-specific features, and comorbidities. Conclusion: Medical awareness and evidence need to be further improved to enhance the medical care situation of these patients with complex needs.