The impact of the EUSCLE Core Set Questionnaire for the assessment of cutaneous lupus erythematosus.

Kuhn A, Patsinakidis N, Bonsmann G

Research article (journal)

Abstract

Epidemiological data and standard European guidelines for the diagnosis and treatment of cutaneous lupus erythematosus (CLE) are lacking in the current literature. In order to provide a standardized tool for an extensive consistent data collection, a study group of the European Society of Cutaneous Lupus Erythematosus (EUSCLE) recently developed a Core Set Questionnaire for the assessment of patients with different subtypes of CLE. The EUSCLE Core Set Questionnaire includes six sections on patient data, diagnosis, skin involvement, activity and damage of disease, laboratory analysis, and treatment. An instrument like the EUSCLE Core Set Questionnaire is essential to gain a broad and comparable data collection of patients with CLE from different European centres and to achieve consensus concerning clinical standards for the disease. The data will also be important for further characterization of the different CLE subtypes and the evaluation of therapeutic strategies; moreover, the EUSCLE Core Set Questionnaire might also be useful for the comparison of data in clinical trials. In this review, the impact of the EUSCLE Core Set Questionnaire is discussed in detail with regard to clinical and serological features as well as therapeutic modalities in CLE.

Details about the publication

JournalLupus
Volume19
Issue9
Page range1144-1152
StatusPublished
Release year2010
Language in which the publication is writtenEnglish
KeywordsSeverity of Illness Index; Outcome Assessment (Health Care); Clinical Trials as Topic; Lupus Erythematosus Cutaneous; Skin; Humans; Questionnaires; Severity of Illness Index; Outcome Assessment (Health Care); Clinical Trials as Topic; Lupus Erythematosus Cutaneous; Skin; Humans; Questionnaires

Authors from the University of Münster

Bonsmann, Gisela
Clinic for Dermatology